Phed Up
Phed Up

Phed up is an action group dedicated to campaigning for access to treatment for PKU

Our aims:

Freedom of information relating to PKU & treatments

Funding for drug treatments by the NHS

Realistic prices from drug manufacturers

Empowering patient choice

Raising awareness of PKU in the media

Supporting PKU patients and their families

in obtaining the best treatment

Imagine being denied food every day, imagine living on synthetic substitutes, imagine there’s a drug that can help but the NHS refuses funding

International PKU Day 28th June – Invite your MP to an event being held at the House of Commons to discuss access to Kuvan and any other PKU-related issues that are important to you. This is a fantastic opportunity for your opinions to be heard – Go For It !

Download our template letter